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Care arrangements for people with dementia in developing countries
  • Institute of Psychiatry
  • University of Liverpool
  • Schizophrenia Research Foundation
  • Voluntary Health Services
  • Goa Medical College
  • Heritage Hospitals
  • Medical College
  • Beijing University
  • Chinese University of Hong Kong
  • Mackay Memorial Hospital
  • Catholic Sanipax Med.-Soc. Educ.
  • GCBA
  • Universidade de São Paulo (USP)
  • Universidade Estadual Paulista (UNESP)
  • Medical School
  • Hospital Del Salvador
  • Universidad Valparaíso
  • Universidad Medica de la Habana
  • Univ. Nacional Pedro Henriquez Urena
  • Asociacion Dominicana de Alzheimer
  • Natl. Inst. of Neurol./Neurosurg.
  • Paitilla Medical Center Hospital
  • Santa Fe Hospital
  • Universidad Peruana Cauetano Heredia
  • University of Uruguay
  • Faculty of Medicine
  • Fundacion Alzheimer's Venezuela
  • Teaching Hospital
Background: Rapid demographic ageing will soon lead to large increases in the numbers of persons with dementia in developing countries. This study is the first comprehensive assessment of care arrangements for people with dementia in those regions. Methods: A descriptive and comparative study of dementia care; caregiver characteristics, the nature of care provided, and the practical, psychological (Zarit Burden Interview, General Health Questionnaire) and economic impact upon the caregiver in 24 centres in India, China and South East Asia, Latin America and the Caribbean and Africa. Results: We interviewed 706 persons with dementia, and their caregivers. Most caregivers were women, living with the person with dementia in extended family households. One-quarter to one-half of households included a child. Larger households were associated with lower caregiver strain, where the caregiver was co-resident. However, despite the traditional apparatus of family care, levels of caregiver strain were at least as high as in the developed world. Many had cutback on work to care and faced the additional expense of paid carers and health services. Families from the poorest countries were particularly likely to have used expensive private medical services, and to be spending more than 10% of the per capita GNP on health care. Conclusions: Older people in developing countries are indivisible from their younger family members. The high levels of family strain identified in this study feed into the cycle of disadvantage and should thus be a concern for policymakers in the developing world. Copyright © 2004 John Wiley & Sons, Ltd.
Issue Date: 
International Journal of Geriatric Psychiatry, v. 19, n. 2, p. 170-177, 2004.
Time Duration: 
  • Alzheimer's disease
  • Caregivers
  • Cost of illness
  • Dementia
  • Developing countries
  • Psychological
  • Stress
  • adult
  • Africa
  • aged
  • caregiver
  • Caribbean Islands
  • China
  • comparative study
  • controlled study
  • dementia
  • developed country
  • developing country
  • economic aspect
  • elderly care
  • family
  • female
  • health care cost
  • health care policy
  • household
  • human
  • India
  • interview
  • major clinical study
  • male
  • mental health service
  • patient care
  • psychological aspect
  • qualitative analysis
  • questionnaire
  • South and Central America
  • Southeast Asia
  • stress
  • Aged
  • Alzheimer Disease
  • Cost of Illness
  • Developing Countries
  • Employment
  • Family
  • Female
  • Financing, Personal
  • Home Nursing
  • Humans
  • Male
  • Patient Acceptance of Health Care
  • Private Practice
  • Stress, Psychological
  • Time Factors
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Appears in Collections:Artigos, TCCs, Teses e Dissertações da Unesp

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