Adaptação cultural e validação do JAMAR - Juvenile Arthritis Multidimensional Assessment Report para a artrite idiopática juvenil

Abstract

Objectives: Translate and validate Juvenile Arthritis Multidimensional Assessment Report (JAMAR) into Brazilian Portuguese for Juvenile Idiopathic Arthritis (JIA). Methods: English JAMAR was translated according to international guidelines. The Brazilian-Portuguese version was applied in cross-sectional evaluation in JIA cases treated between May and December 2012. Clinical, demographic and joint assessments, physician global visual analog scale, Juvenile Arthritis Score Damage Index (JADI), with parents and children version in comparison to a healthy control group. The JAMAR components are: functional scales and quality of life scales. The scores were analyzed by intraclass correlation coefficient (ICC) for reliability between test-retest. The Median test was used to compare functional and quality of life scales, physician global assessment, pain and overall well-being for children and parents global assessment scales, Juvenile Arthritis Disease Activity Score (JADAS), clinical Juvenile Arthritis Disease Activity Score (cJADAS), Juvenile Arthritis Parent / Child Assessment Index (JAPAI / JACAI) scales. The Kappa test was used to measure the degree of agreement between parents, children and physician about disease activity perception. The Spearman correlation test was used to verify the association between JAPAI / JACAI and cJADAS scores. Results: The Brazilian-Portuguese version of JAMAR was obtained by 3 independent direct translations and 2 reverse translations and a final version by consensus expert committee. The pre-test was applied in ten JIA children of 9.8 to 18.6 years and their parents. Questionnaires from 72 parents and 69 children with JIA, and 72 parents and 62 children healthy were filled out. The JIA cases were classified as persistent oligoarticular (43.4%), enthesitis related arthritis (19.7%), extended oligoarticular (14.5%), polyarticular rheumatoid factor (RF) negative (10.5%), polyarticular RF positive ...