Na companhia do vírus: concepções e vivências de adolescentes portadores do HIV/Aids

Abstract

Transformações sociais decorrentes do acelerado desenvolvimento urbano-industrial introduziram grandes mudanças no modo de vida. Considerando os adolescentes como tendo características próprias de um grupo em transição para a vida adulta, e as influências decorrentes do meio social e cultural, acrescenta-se mais um problema trazido pelo surgimento do HIV/Aids. Nessa condição específica de portador do HIV/Aids, tem-se que esse grupo redefine suas formas de enfrentar a vida, devido à exclusão social que a doença ainda provoca. Assim, o trabalho busca identificar a percepção de adolescentes portadores do HIV/Aids, atendidos no Ambulatório de Imunologia Especial do Hospital das Clínicas da Faculdade de Medicina de Botucatu/UNESP, sobre como é viver com a doença no ambiente familiar, na escola e no hospital. Conforme a OMS, os adolescentes situam-se entre 10 a 19 anos de idade. Selecionamos para entrevista semi-estruturada, treze adolescentes em tratamento durante o ano de 2011 e para os quais se apresentou o Termo de Consentimento Livre e Esclarecido aprovado pelo Comitê de Ética da Faculdade de Medicina. Dentre as concepções, questões como novos arranjos familiares, preconceito e estigma encontram-se presentes. Deste modo, dar voz aos jovens pacientes e reconhecer a reconfiguração de...

Considering the fact that adolescents typically show the characteristics of a group in transition to adulthood as well as the influences from their social and cultural milieus, another problem brought by the rise of HIV/AIDS is added. In this specific condition of carrying HIV/AIDS, this group of individuals redefines their forms of coping with life due to the social exclusion that such disease still causes. Hence this study aimed at identifying the perception of adolescents with HIV/AIDS attended to at the Special Immunology Outpatient Unit of the Botucatu School of Medicine University Hospital/UNESP of what it is like to live with the disease in their family environment, at school and in the hospital. According to WHO, adolescents are from 10 to 19 years old. It was used qualitative research with thirteen adolescents undergoing treatment in 2011, that was selected to participate in semi-structured interviews, to whom was presented a Free-Consent Form approved by the Ethics Committee of the School of Medicine. In this initial stage of presenting the first results, described the data found, classified according specific characteristics, such as the fact that all respondents studying in public schools. Because they are young, there is the need to expand educational projects on the topic. These policies should be proposed in order to meet and talk more openly with students and educators concerning health, disease and approach to patients. About the outpatient clinic, the patients ranged from feeling normal, good and great. These data lead to show that this space is the presence of humanization and that there is a good relationship between doctor and patient, considering that the multidisciplinary team seeks to meet the physical, mental and social these adolescents, indicating an adaptation of the traditional biomedical model... (Complete abstract click electronic access below)